yesterday was my last treatment of lemtrada. well until next year. five days. not a humongous sacrifice to feel better. or try to get some semblance of normalcy. normal is not my setting.
i spent that time sitting nearly upright in an uncomfortable chair for an average of seven hours a day. no big deal. i had books, a computer, my ipad, phone, and headphones of course. oh and snacks. plus they had people that came around to check on all their patients keeping us hydrated, uplifted, and in no short supply of gloriously warm blankets.
ya know when you go to the beach and stick your feet in right at the point where the water hits the sand….and you stand there for just a little while just to feel the power of the ocean? that is how my entire body felt when i woke up this morning. i felt so weighed down. this is nothing new in relation to having MS but it’s usually just my legs.
this treatment is no joke. my immune system is more suppressed than usual but all for the ideal result; kill the bad cells and build new ones. i’m not some whimpy broad who can’t tolerate pain, but this pain is different and i’m trying to view it in a positive way. rest for me is not easy. i want to do everything i can no matter how i feel but i can’t and i have to let this medicine do work.
any new medication comes with a hope, will it work? i believe it will. since i’ll probably be spending a good portion of my time in my ass in the coming weeks i’m asking for some recommendations….books? netflix? prime? i do not need another hobby since coloring is my go to activity. i plan on slowly reincorporating yoga into my daily regimen.
until my next genius discovery…